Chalk Art, McKinley Hill, & a Little Known Genetic Disorder

Head over to Top of Tacoma and just outside you’ll find a message of love.

We recently passed by on a drizzly day to find a vibrant work-in-progress being chalked on the sidewalk. No artist was to be found.

An hour and a few beers later we returned to find Henry Barbosa knelt over his creation. With chalk on his hands, and a smear of yellow streaked down his nose, he paused to tell us about his good friend Reggie Bibbs who has neurofibromatosis. You may know it as the condition made famous by the 1982 film The Elephant Man.*

After 40 years of living in hiding, for fear his appearance might upset others, Reggie has become a celebrity in his own right with the Just Ask! Foundation.

Not only does the name tell others it’s alright to strike up a conversation, it encourages those needing a bit of help to reach out. As Henry explained to us, “Reggie’s on disability and there’s a lot it doesn’t cover. The special shoes he needs can be thousands of dollars.”

One of the ways Henry helps raise awareness about NF is by drawing celebrities as they might look if they had the condition. He recently created a baby Chewbacca with NF specifically for children suffering from it to relate to, and drew Kurt Cobain.

The cause is close to Henry’s heart because he, too, has dealt with NF and undergone dozens of surgeries.

You may soon see Henry creating art in your neighborhood, as he plans to spread his messages all around Tacoma. If you catch him, look for the smiley-face can accepting donations to help end NF. You can also help those with NF through Just Ask!.

For more, follow Henry Barbosa on Instagram and Twitter.

Images by Sierra Hartman

*Though popularized by the film, according to justaskfoundation.org, “NF is not the ‘Elephant’s Man Disease’, although it was at one time believed to be. Scientists now believe that John Merrick, the so-called ‘Elephant Man’, had Proteus Syndrome, an entirely different disorder.”

TIP JAR

Paywalls suck and we don’t want to use them. If you like what we do, feel free to leave a tip.
$
Personal Info

Donation Total: $1.00

Your email address will not be published. Required fields are marked *

SEE MORE
Here’s What Mayor Woodards Has Been up to Since November